I was going to do another post about the ethics of owning a spirit vessel, but two things happened:
- I came across an article about another young woman with idiopathic intracranial hypertension.
- I realized that, as I was writing the spirit vessel post, it could pretty much be summed up as: “So, you want to own a ghost. Maybe that is a thing you should not do.”
Instead, I strongly encourage you to read about Sarah Sims. Her situation is very much like mine, though I don’t have any children. She’s another doctor-baffling lady with intracranial hypertension without a clear origin, who was reasonably active and not overweight. Like me, she’s also had a lot of her life taken from her. We are both exhausted, in pain, dependent on medications, and have dealt with suicidal ideation (a not-uncommon side effect of chronic illnesses in general, the mood swings increases in cranial pressure can trigger, and Diamox). Though the article doesn’t mention anything about Sims’ employment, the pattern of dizziness, fatigue, appetite loss, chronic pain, and visual disturbances described in it keep me from being able to work outside of my home.
We are both determined to find a cure.
Ultimately, I didn’t know how to feel when I read this article. On one hand, reading other people’s stories helps me work through the feelings of fear, loneliness, and desperation that rear their heads sometimes. IIH also rarely makes any kind of headline, so I’m always inclined to link the crap out of it when I see it to help non-sufferers understand more about the disease’s symptoms, onset, and impact.
On the other hand, the article isn’t kidding about things like strokes, brain bleeds, seizures, and suicide claiming the lives of people with IIH. Sims’ interview is at once inspirational, educational, and terrifying.
Because IIH is still a rare disease– rare enough to the point of being a mystery to many doctors, let alone virtually unknown to the public– it’s an article that needs to be read.
(And, for those of you guys here for the ghost post:
- Talk to a qualified spiritworker about your needs and what you’re prepared to do to take care of a spirit vessel.
- Etsy listings marked “!!SUPERNATURAL HAUNTED INCUBUS SPIRIT EXTREMELY POWERFUL!!” almost always aren’t.
- Spiritwork isn’t for the faint of heart, so make sure this is really honestly something you’re willing to devote time and effort to learning to do.
That’s pretty much everything. Thanks for reading me kvetch about brain problems instead, I promise I’ll have more curiosities for you in short order!)